Sunday, April 3, 2011

O.k. O.k. I know it's been a long time

Yes, I know I haven't put anything on here in a long time. Sorry, for a while there I just didn't want anything to do with the computer.

So here is the scoop. Transplant went great. Janice was awesome!!!!! For about two days after I was completely exhausted and didn't even want to talk to anyone on the phone, let alone turn on the computer. I didn't feel sick, but didn't feel great either. I am pretty sure this was the radiation catching up with me.

Even after that, I was pretty tired most of the day.

I was considered engrafted n March 30 after three days of my neutrophils being over 500. They are actually around 2500 now. This normally means I could have gone home, but no! I had to get acute graft vs host (GVH) disease. In my case, it has taken the form of diarrhea. I guess I shouldn't complain. So far, it has not affected my liver, or kidneys or any other vital organs. A mild case of GVH is good as it should also help with killing any remaining leukemia that was in my body. But there were several days there where I couldn't even leave my room because I couldn't go far from the bathroom. YES, I am truly a prisoner.

So what this means is they are giving me steroids to help stop the problem and get the marrow under control AND, I haven't not been allowed to eat or drink anything for about 6 days. My taste buds recovered about 2 days after this and I have been craving food like crazy. Especially nachos and smothered burritos. Do you know how many cooking shows and food commercials there are out there? And even during regular shows, they sure eat or drink alot.